Health Data Sharing and Governance Specialist

• A degree in Law, with an advanced postgraduate degree in a relevant area such as health law, data protection, technology law, artificial intelligence governance, bioethics or biomedical data governance
• Research experience at the intersection of law, artificial intelligence, and data governance, including legal and ethical analysis of biomedical data sharing, AI regulation, and emerging governance frameworks
• Experience developing data access policies, data-sharing agreements, consent templates, and governance best practices, with a focus on translating complex legal and regulatory requirements into practical frameworks for health-sector and research stakeholders.
• Knowledge of legal and ethical issues surrounding the collection, access, sharing and secondary use of health, genomic or other sensitive research data
• Familiarity with the GDPR, European Health Data Space, EU AI Act and related European regulatory frameworks
• Ability to communicate legal and regulatory concepts effectively to audiences without a legal background
• Excellent written communication skills, including experience preparing policies, reports, guidance documents, agreements or scholarly outputs
• Strong analytical and legal reasoning skills
• Ability to translate regulatory requirements into clear and implementable operational solutions
• Ability to work effectively across legal, scientific, technical and policy disciplines
• Comfortable collaborating with researchers, bioinformaticians, software developers, data stewards and legal or ethics specialists
• Proactive and pragmatic approach to problem solving
• Ability to work independently while contributing effectively to collaborative projects
• Curiosity and willingness to engage with rapidly evolving areas of biomedical research, AI and data regulation

• A doctorate or ongoing doctoral research related to health law, AI, technology governance, open science or data governance
• Qualification or professional experience as a lawyer
• Knowledge of international approaches to health-data governance and cross-border research data sharing
• Experience with organisations or initiatives working on standards for responsible genomic and health-data sharing, such as GA4GH or comparable international research infrastructures
• Academic publications, policy reports or presentations related to biomedical data governance, health law, artificial intelligence or open science

• Excellent communication skills in English (written and spoken), as it is the language used by the team

We are seeking a Health Data Sharing and Governance Specialist, AI and Research to support the European Genome-phenome Archive (EGA) at the intersection of law, biomedical research, data governance, open science and emerging technologies. The selected candidate will contribute to the development and implementation of legal, ethical and governance frameworks for the responsible sharing and reuse of human genomic, phenotypic and other sensitive biomedical data. The role will focus on translating complex legal and regulatory requirements into practical policies, agreements, procedures and guidance for researchers, data access committees and research infrastructures.

Key areas will include data access and secondary use of biomedical data, data-sharing agreements, consent, data-use conditions, data protection, AI governance and emerging regulatory frameworks. The candidate will work closely with multidisciplinary EGA teams, EMBL-EBI and international partners, and contribute to European-funded projects related to biomedical data sharing, federated access, FAIR data and responsible AI.

Legal and Data Governance

• Provide legal and governance expertise on the access, sharing, processing and secondary use of genomic, phenotypic and biomedical data, including controlled-access, federated and cross-border data-sharing models.
• Analyse and interpret legal, ethical and regulatory requirements and translate them into practical approaches for EGA services and research-data infrastructures, including developments in data protection, health-data reuse and AI regulation.
• Develop and maintain data access policies, data-sharing and data-use agreements, consent templates, governance guidance, SOPs and frameworks for documenting data-use conditions and access restrictions.

AI Emerging Regulation

• Analyse how AI governance requirements interact with data access, consent, transparency, accountability and research ethics.
• Contribute legal and governance expertise to AI-related projects and produce policy analyses, guidance and practical recommendations for responsible use of AI in biomedical research.

Collaboration and European Projects

• Collaborate closely with EGA teams at CRG and EMBL-EBI, as well as legal, ethical, scientific and technical experts from international partner organisations.
• Participate in European-funded and international projects related to health data, genomics, federated infrastructures, AI and data governance.
• Contribute to project deliverables, policy documents, governance frameworks, workshops and working groups, in the frame of SCAILED project, among others

• Contract duration: Technical and scientific activities contract linked to the project (estimated until 30/09/2029).
• Schedule: Full-time, hybrid model available
• Estimated annual gross salary: Salary is commensurate with qualifications and consistent with our pay scales
• Target start date: As soon as possible

We provide a highly stimulating environment with state-of-the-art infrastructures, and unique professional career development opportunities. To check out our training and development portfolio, please visit our website in the training section.

We offer and promote a diverse and inclusive environment and welcomes applicants regardless of age, disability, gender, nationality, ethnicity, religion, sexual orientation or gender identity.

The CRG is committed to reconcile a work and family life of its employees and are offering extended vacation period and the possibility to benefit from flexible working hours.